Anna

Anna

About a year ago, i spoke at the International Conference for Disability and Diversity in Honolulu and one of my commitments, while there, was to sit on a panel of 'experts' to discuss and field questions about innovations around the world for access for people with disabilities. One person was a literal ambassador. Next to me sat the president of something important at Sprint and a handful of other very positively influential people. They all had something very poignant to contribute and delivered quite eloquent presentations.

Then there was me. I was actually pretty bored. I mean, the innovations these people were discussing are very interesting, but thats just not who i am. I appreciate innovations, making my life easier (My incredible mountain bike is a very interesting innovation. So is my new surfboard that is being shaped this week! Woohoo!) but on a daily basis i adopt a philosophy that directs my attention elsewhere...to myself. I know that sounds elitist and self-righteous, but bare with me. And i know what the law says...The American Disabilities Act of 1978 and my civil rights and all the other very liberating steps the world has taken to make sure i'm not excluded. I appreciate a cutout in a curb or a ramp or bathroom stall i can get into. They make my life easier, BUT i live my life day in and day out under the umbrella understanding that LIFE IS NOT GOING TO BE COMFORTABLE, nor is it supposed to be. I don't like the phrase supposed to because it implies a certain state of predestination or set standard. By using supposed to i'm merely pointing to the thought that maybe this is what i wanted. I'll leave you with that thought to ponder...

As part of this philosophy i also believe that it is not the world's responsibility to adapt to me, but my responsibility to adapt to the world. When i shared this thought, during the panel discussion, i felt 100s of beaty little eyes squint in my direction. I saw scowls form and a wave of angry red energy rush towards me from the audience. I was contradicting everything that was being discussed but I couldn't sit there and listen to people complain anymore! All i heard was "We need this!" and "We need that!" and then the world will be a better place. I actually agree BUT in order for these things to happen, we need PIONEERS! A pioneer paves the way. That means getting out there in the world and putting yourself in uncomfortable situations before things like we were discussing are in place, not for the sake of 'paving' it for others, but merely because you want to be there. Call me crazy, but i believe we are called to something above the laws of this world, above the ADA or anything else. That is the law of self, where you create what you want though the power of the entire collective consciousness within you. Like Dr. Bronner said, "All-one". And this law drives me to not hold the world responsible to enable me, but that i am fully enabled already. I believe that where i am at, being paralyzed, is all my choice and anywhere i go with it must be reached via my effort, under my responsibility. The question i always ask myself, "How uncomfortable are you willing to get?" Getting, or not getting, to where i want to go is determined by my answer to that question.

Well you could imagine how this did not go over so well. The entire conference was about inclusion and changing the world, while i was telling people, with much 'greater' disabilities than myself, to change themselves. Whoa! Some very diplomatic sweeping of me under the carpet was deployed by the real live ambassador/moderator and the day saved. I scuttled dejectedly out of the room to the bathroom when the panel discussion ended and was met outside by two people who had connected with what i said. Relief! Yes, from what i did in the bathroom, but also from the support i felt from these two people. Thankfulness flooded me! However, in speaking with them, i realized what i did not say up there. During my share time on the panel, I touched on the point that i have it easy. I have a disability that allows me to do anything i want. I'm relatively young and strong and not limited at all really. I wholeheartedly admitted that i am not an authority on 'greater' disabilities and therefore could never understand. Well, by not taking that statement a step further, i pretty much succeeded in discrediting myself. What i did not say up there, was that there is always someone with a 'greater' disability. When we start to see our disability (Everyone has one. Physical or not. It just might not be as visible.) as something that 'happened' to us, then we set ourselves apart as an individual needing something else other what we have...which, i believe, is what we CHOSE! When we accept any given situation as what just is and simply choose to put one foot in front of the other from there, then we step into a provoked life. Provoked because THAT is actually what you came here to do. That is, WALK YOUR PATH. Thats it. Regardless of any law or preconceived notion or other people's thoughts or anything. 

One person who has helped me realize this is my good friend, Anna Young. In order for me to explain what she means to me, i need to rewind a little bit...

You see, I'm a fraud. I don't surf and bike and adventure because i have some special, above and beyond motivation i've discovered. my athletic endeavors, a lot of the time, are more about survival. On any given day, the major emotional emotional issue i deal with is feeling claustrophobic. You can imagine that not being able to get up and run, or even get up for anything, can feel very literally binding, like you're bound up. So i relieve myself of this feeling, and my anger, by getting out in nature. I have this deep seeded need to prove to myself that i am not bound and when i'm out there, i feel healed in a way. Sometimes i feel motivated and sometimes i don't, but. all the time, i feel 'stuck' and adventuring is my greatest coping mechanism.

Then i met Anna. Whats the ultimate thing that could happen to you to instill a critical level of claustrophobia? Being buried alive? Well, thats how Anna feels all day, every day. She has a rare lung disease that makes breathing literally almost impossible for her. Every breath is arduous. She lives in constant pain, near death, in and out of the hospital, in a constant state of being buried alive. If not being able to run feels binding, how does not being able to breathe feel?

So Anna's life has become a source of REALITY CHECK for me. I don't like the word inspiration. I don't know if i believe in it and it is definitely over-used. I believe in REALITY, in the here and now, and my choice in how i deal with it. I could feel sorry for myself. I'm paralyzed for god's sake! Or i could look at Anna, battling every second. At least i can lay at rest and sleep! Imagine what trying to sleep is like for her. I should have told everyone in that room about her. Thinking about facing your actual survival every minute of the day, puts things into perspective.

Now, I accept my path. No inspiration or motivation. It just is what it is. I came here to walk it. One foot in front of the other. It is MY responsibility to endure, not yours or the government's or the world's, based on some law. I accept help (sometimes), but when it comes down to it, if i want to get somewhere, the responsibility to enlist the help i may need and anything else falls on me. "Adapt. Overcome," Marine Sargeant Thomas Highway (Clint Eastwood, Heartbreak Ridge). The human will to survive is a very powerful thing, living in all of us, and you are capable of enduring so much more than your protective left brain allows you to believe. Odds are, at some point in your life, you will face your worst fears. They are your worst fears for a reason. That reason is very simple. You chose them. I always said my worst fear was being paralyzed and i speak to you now from experience: You are capable of rising from much greater depths than you ever imagined. There is no secret. There is no need to 'accomplish' anything. YOU are perfectly you, perfectly on your path. We all have days where we feel motivated and not so motivated. Don't seek inspiration, just walk your path. THAT is the provoked life.  Thank you, Anna!

Moab: A Photo Essay

Moab: A Photo Essay

I got Freedom's ashes right before leaving, so this trip was kind of about him. Still celebrating him.

I got Freedom's ashes right before leaving, so this trip was kind of about him. Still celebrating him.

I hoisted my bike on top of my car myself. Super proud but shitty gas mileage.

I hoisted my bike on top of my car myself. Super proud but shitty gas mileage.

Scored a powder day at Mammoth on May 9, 2015. Good thing i brought my ski gear!

Scored a powder day at Mammoth on May 9, 2015. Good thing i brought my ski gear!

Navigating a rock garden in Rock Creek. Practice for some of the technical terrain in Moab.Photo by Colin Farrell (@oppcreative)

Navigating a rock garden in Rock Creek. Practice for some of the technical terrain in Moab.

Photo by Colin Farrell (@oppcreative)

Gotta love riding with your friends!Photo by Colin Farrell with GoPro (@oppcreative)

Gotta love riding with your friends!

Photo by Colin Farrell with GoPro (@oppcreative)

Hit Rock Creek, Sand Canyon and Wagon Wheel all in one day with friends before heading east.Photo by Brahm Goodis (@bgoodis)

Hit Rock Creek, Sand Canyon and Wagon Wheel all in one day with friends before heading east.

Photo by Brahm Goodis (@bgoodis)

I may or may not have hit a tree.Photo by Colin Farrell (@oppcreative)

I may or may not have hit a tree.

Photo by Colin Farrell (@oppcreative)

Bootleg Canyon, Boulder City, NV. Running tubeless for the first time! The guys at All Mountain Cyclery really took care of us. Thats Fucci (total shredder) behind me.Photo by Jeff Fox (@foxonarock)

Bootleg Canyon, Boulder City, NV. Running tubeless for the first time! The guys at All Mountain Cyclery really took care of us. Thats Fucci (total shredder) behind me.

Photo by Jeff Fox (@foxonarock)

Minco taught me i could love another dog again. He's an awesome trail dog, even at seven months old, and slept on top of me.Photo by Jeff Fox (@foxonarock)

Minco taught me i could love another dog again. He's an awesome trail dog, even at seven months old, and slept on top of me.

Photo by Jeff Fox (@foxonarock)

This is just a damn good man. Finally on our way to Moab.

This is just a damn good man. Finally on our way to Moab.

The first photo on the first day in Moab. BOOM! Circle-O TrailPhoto by Jeff Fox (@foxonarock)

The first photo on the first day in Moab. BOOM! Circle-O Trail

Photo by Jeff Fox (@foxonarock)

Dark sky BTSPhoto by Diana Proemm (www.dpphoto.net)

Dark sky BTS

Photo by Diana Proemm (www.dpphoto.net)

Beauty and life all aroundPhoto by Diana Proemm (www.dpphoto.net)

Beauty and life all around

Photo by Diana Proemm (www.dpphoto.net)

Potential EC (Explorer catcher) here, because my front end is a little wider, but i was stoked how well my bike handled the technical terrain.Photo by Diana Proemm (www.dpphoto.net)

Potential EC (Explorer catcher) here, because my front end is a little wider, but i was stoked how well my bike handled the technical terrain.

Photo by Diana Proemm (www.dpphoto.net)

I was definitely challenged with the technical terrainPhoto by Diana Proemm (www.dpphoto.net)

I was definitely challenged with the technical terrain

Photo by Diana Proemm (www.dpphoto.net)

Tight squeeze but look at that suspension working!Photo by Diana Proemm (www.dpphoto.net)

Tight squeeze but look at that suspension working!

Photo by Diana Proemm (www.dpphoto.net)

Klondike Bluffs. This was the hardest day of them all, physically. I was really challenged.Photo by Jeff Fox (@foxonarock)

Klondike Bluffs. This was the hardest day of them all, physically. I was really challenged.

Photo by Jeff Fox (@foxonarock)

The more time i spent with this guy, the more i wanted to be with him.

The more time i spent with this guy, the more i wanted to be with him.

Have never seen anything like this. Some serious Cloud Porn!Photo by Jeff Fox with iPhone (@foxonarock)

Have never seen anything like this. Some serious Cloud Porn!

Photo by Jeff Fox with iPhone (@foxonarock)

Slick Rock Trail. Lots of undulations and climbing this day, but my favorite by far. Really want to do this loop again now that i know it. That's Sylvie reeling me in. She's a good ride partner.Photo by Jeff Fox (@foxonarock)

Slick Rock Trail. Lots of undulations and climbing this day, but my favorite by far. Really want to do this loop again now that i know it. That's Sylvie reeling me in. She's a good ride partner.

Photo by Jeff Fox (@foxonarock)

The fun part!Photo by Diana Proemm (www.dpphoto.net)

The fun part!

Photo by Diana Proemm (www.dpphoto.net)

if you could see down into this canyon, you would understand why i'm sitting there. Absolutely breath taking!Photo by Jeff Fox (@foxonarock)

if you could see down into this canyon, you would understand why i'm sitting there. Absolutely breath taking!

Photo by Jeff Fox (@foxonarock)

All smiles!Photo by Diana Proemm (www.dpphoto.net)

All smiles!

Photo by Diana Proemm (www.dpphoto.net)

Shit happensPhoto by Diana Proemm (www.dpphoto.net)

Shit happens

Photo by Diana Proemm (www.dpphoto.net)

The Crew from Telluride Adaptive we met up with. From left to right: Sylvie, Ricky Bobby, Patty Wack, Madman Poole, Jer, and Jet (my fav). Cool to see all the different bikes.Photo by Jeff Fox (@foxonarock)

The Crew from Telluride Adaptive we met up with. From left to right: Sylvie, Ricky Bobby, Patty Wack, Madman Poole, Jer, and Jet (my fav). Cool to see all the different bikes.

Photo by Jeff Fox (@foxonarock)

The terrain in Moab is so unique and I fell in love with it. If you haven't, you must.Photo by Jeff Fox (@foxonarock)

The terrain in Moab is so unique and I fell in love with it. If you haven't, you must.

Photo by Jeff Fox (@foxonarock)

Gemini Bridges! Blown away by the geologic history of this place. Taking this pic was a little sketchy, but i didn't care.Photo by Jeff Fox (@foxonarock)

Gemini Bridges! Blown away by the geologic history of this place. Taking this pic was a little sketchy, but i didn't care.

Photo by Jeff Fox (@foxonarock)

Pausing for a Free Wheel, Thule and Toyota advertisement. There ya go Pat!Photo by Jeff Fox (@foxonarock)

Pausing for a Free Wheel, Thule and Toyota advertisement. There ya go Pat!

Photo by Jeff Fox (@foxonarock)

As much of a ham as i am, I discovered i like to be behind the camera too.

As much of a ham as i am, I discovered i like to be behind the camera too.

Foxy and i stopped to check out the Crackhouse so he could play around.Photo by Jeff Fox (@foxonarock)

Foxy and i stopped to check out the Crackhouse so he could play around.

Photo by Jeff Fox (@foxonarock)

Foxy is super talented and makes it easy though.

Foxy is super talented and makes it easy though.

I wasn't gonna let these steps stop me.Photo by Diana Proemm (www.dpphoto.net)

I wasn't gonna let these steps stop me.

Photo by Diana Proemm (www.dpphoto.net)

This should be a postcard! FOUR national parks in one day started with sunrise at the Arches. Felt the energy of this place.Photo by Jeff Fox (@foxonarock)

This should be a postcard! FOUR national parks in one day started with sunrise at the Arches. Felt the energy of this place.

Photo by Jeff Fox (@foxonarock)

Then to Canyon LandsPhoto by Jeff Fox (@foxonarock)

Then to Canyon Lands

Photo by Jeff Fox (@foxonarock)

Then to Bryce CanyonPhoto by Jeff Fox (@foxonarock)

Then to Bryce Canyon

Photo by Jeff Fox (@foxonarock)

Saw a unicorn on the way to Zion

Saw a unicorn on the way to Zion

Then through Zion

Then through Zion

Silver Canyon, White Mountains. Are we in Nevada or California? I don't even know! On our way home, we struck the biggest adventure of them all. 6000 vert in 10 miles. The Land of Milk and Honey awaits beyond.Photo by Jeff Fox (@foxonarock)

Silver Canyon, White Mountains. Are we in Nevada or California? I don't even know! On our way home, we struck the biggest adventure of them all. 6000 vert in 10 miles. The Land of Milk and Honey awaits beyond.

Photo by Jeff Fox (@foxonarock)

Soaking it all in with a beer before crossing the last leg home to Mammoth. Thanks for the memories, Foxy!

Soaking it all in with a beer before crossing the last leg home to Mammoth. Thanks for the memories, Foxy!